On the V front we are still in waiting mode. It looks we can now consider her fifth med a failure, she is back to having almost daily seizures maybe one or two good days in there and her behavior is just as off the wall as it was on Keppra. She is so close to her surgery though that it isn't worth it to wean her off this one and wean her onto another one so for now we are in a holding mode and just waiting for February 16th. This surgery can't come fast enough just this week V has become aware that something is different about her, and it breaks my heart. Every morning she asks why she has to take medicine but her sisters do not, and at least daily she asks me what she is sick and tells me she wants to be better. I am so glad we are just a few weeks out from surgery watching her realize she is different is far harder then I thought it would be. I was naive in thinking that she wouldn't even begin to ask these questions and I really should have prepared better for it. The reality of her what her future holds becomes a bit scarier every day.
Wednesday, January 26, 2011
Mine!
On the V front we are still in waiting mode. It looks we can now consider her fifth med a failure, she is back to having almost daily seizures maybe one or two good days in there and her behavior is just as off the wall as it was on Keppra. She is so close to her surgery though that it isn't worth it to wean her off this one and wean her onto another one so for now we are in a holding mode and just waiting for February 16th. This surgery can't come fast enough just this week V has become aware that something is different about her, and it breaks my heart. Every morning she asks why she has to take medicine but her sisters do not, and at least daily she asks me what she is sick and tells me she wants to be better. I am so glad we are just a few weeks out from surgery watching her realize she is different is far harder then I thought it would be. I was naive in thinking that she wouldn't even begin to ask these questions and I really should have prepared better for it. The reality of her what her future holds becomes a bit scarier every day.
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